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Why I needed those ((((Hugs)))

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ProfilePosted byOptionsPost Date

Joy

Joy Report 7 Mar 2008 09:44

Julie, I know very little about autism, other than what I have read including a book called For the Love of Ann.

I do hope that you manage to get an appointment with the doctor that you want and that Alex and you receive the help that you need. He is more than half way there by having you as his loving Mum!

Another ( hug ) for you.

MaryinSpain

MaryinSpain Report 7 Mar 2008 09:45

Julie heres another (((((((((((((HUG)))))))))))))
and everything crossed you and Alex get all the help you both need
Love Mary xx

Wild Cat

Wild Cat Report 7 Mar 2008 10:06

Just like to wish you & Alex all the best.My 7 year old nephew has a form of autism as yet they havent said which.x

.•:*:•. Devishly Angelic Juliecat & Panda..•:*:•.

.•:*:•. Devishly Angelic Juliecat & Panda..•:*:•. Report 7 Mar 2008 10:10

Thank you everyone :-)

I do consider myself to be very lucky. I have my son and at the end of the day that's all that matters.

Wildcat I hope your nephew gets all the help he needs.

Tina-Marie

Tina-Marie Report 7 Mar 2008 10:14

Big (((Hugs))) for you Julie.

I haven't read all the replies yet, but I hope someone has given you some peace of mind.

Tina x

.•:*:•. Devishly Angelic Juliecat & Panda..•:*:•.

.•:*:•. Devishly Angelic Juliecat & Panda..•:*:•. Report 7 Mar 2008 10:37

Thanks Tina

Everyone has been brilliant and have helped enormously, including you and your hugs :-)

TaniaNZ

TaniaNZ Report 7 Mar 2008 10:49

Hi Juliecat
Having been on the diagnostic roundabout for many years the one thing I have "learnt"is that your child gets far more out of the proper accomodations for there condition(symptoms)than from a diagnosis.
What you have had sounds like it was pure gold and you couldnt have gotten better if you tried so in a way you were lucky.
a diagnosis of ASD may have had people focusing on the spectrum and not his particular needs.So all good really
hugs from me
regards Tania
PS there are lots of things that resemble ASD and lots of conditions that are comorbid so although your teachers mean well they may be missing the boat somewhat so research what you need to know for a diagnosis and steer the boat where you need to go as in the end you are your sons best advocate
T

Wild Cat

Wild Cat Report 7 Mar 2008 10:59

Julie,thanks.Sure he will,At the end of day whatever the diagnosis its love that helps things along.In sure your Alex has plenty & fight for your rights :)

Jax in Wales

Jax in Wales Report 7 Mar 2008 11:09

Julie

Sorry only just seen this.

Must of been a shock for you hun and upsetting that you were not told this before.

((((((((((((hugs)))))))))) to you and Alex

Jax xx

.•:*:•. Devishly Angelic Juliecat & Panda..•:*:•.

.•:*:•. Devishly Angelic Juliecat & Panda..•:*:•. Report 7 Mar 2008 11:15

Tania I do want to do some reading but it's knowing where to start, that's the problem, which is why I want to see this particular doctor because I trust him.

Wildcat I agree with you about love bringing things along.

Jax thank you :-)

Cumbrian Caz~**~

Cumbrian Caz~**~ Report 7 Mar 2008 20:51

Just seen this thread Julie, sending you another big hug,


As others have said, Alex has a brilliant Mum in you and i wish you all the luck in the world for his future. I work with many autistic spectrum children and most are doing brilliantly.


Good luck, hun,


Caz xxxx

₪ TeresaW elite empress of deleted threads&#

₪ TeresaW elite empress of deleted threads&# Report 7 Mar 2008 21:01

Wow Julie no wonder you needed a hug.

I look at it this way though...now he has the proper 'label' he will get all the right help he needs from the people he needs to give it to him, especially you.

You can only move forward from here. (((((hugs)))))

♫ Penny €

♫ Penny € Report 7 Mar 2008 21:02

Only just seen this thread

Autistic spectrum is huge .

One teacher dropped it on us that son might be Autistic - this was the last day of summer term - world just fell apart for a few days - so know how you feeling.

Hope you get seen soon & find an answer - no one here wanted to label my son as they didn't find it helpful - I WOULD !!!

Cumbrian Caz~**~

Cumbrian Caz~**~ Report 7 Mar 2008 21:04

Julie, I know it may feel hard now but maybe a diagnosis of ATS may get more help for Alex.


At the moment, Im struggling with my teen girl facing total school exclusion, Ive been told an educational psychologists diagnosis would mean it could all be turned round. But the system is so slow, as you will know,


Hugs,


Caz xxxx

♫ Penny €

♫ Penny € Report 7 Mar 2008 21:07

We saw an Ed Psych - only after I stamped my feet - as school had already had it's allocation of 2 for that year - who sets these rules!!

Anyway she was the main one who wouldn't label him!!

.•:*:•. Devishly Angelic Juliecat & Panda..•:*:•.

.•:*:•. Devishly Angelic Juliecat & Panda..•:*:•. Report 7 Mar 2008 21:14

Hi everyone and thanks :-)

Teresa I have had a lot of help over the years but if I can get a diagnosis for this then it will mean he'll get the right type of help in the future.

Caz I hope you get the help you need with your daughter, having that help can make all the difference. (((hugs))) for you from me :-)

Penny yes, the autistic spectrum is huge. I agree with you that having a 'label' can be useful, if you know what the 'label' is then you can deal with it.

I'm not an expert but from having spent the last 15yrs+ with Alex I would say he's at the 'milder' end.

TaniaNZ

TaniaNZ Report 7 Mar 2008 21:29

Hi Julie
What area do you live in
What large hospitals do you have near by
Regards Tania

.•:*:•. Devishly Angelic Juliecat & Panda..•:*:•.

.•:*:•. Devishly Angelic Juliecat & Panda..•:*:•. Report 7 Mar 2008 21:33

Hi Tania

I live in St Helens in Merseyside. I think the nearest large hospital would be Whiston (it seems large to me lol). Either that or one of the Liverpool ones, including Alderhay Children's hospital.

♫ Penny €

♫ Penny € Report 7 Mar 2008 21:37

Our assessments were all done at a local childrens centre - apart from the only thing they found "wrong" with him - he has flat feet - we had to go to hospital for that!

.•:*:•. Devishly Angelic Juliecat & Panda..•:*:•.

.•:*:•. Devishly Angelic Juliecat & Panda..•:*:•. Report 7 Mar 2008 21:44

We have a place in town called The Star Centre. It's for pre-school children with special needs, that's where Alex was first diagnosed. Whether they go beyond pre-school or not I'm not too sure.