General Chat

Kemp


I think we are all fumbling our way through our various needs and intolerances.


We often travel across Canada by train, and one section in particular is troublesome for me ....... the sleeper train from Montreal to Halifax.

There are 3 meals on that train ............... breakfast, lunch and dinner.

I can pre-order suitable meals in high season (summer and Christmas) but not at other times of the year ............. that has to be done at least 10 days before we travel, but even if I order it, the supplier often doesn't load it.

The dining car crew go out of their way to help me .................. but my meal on those occasions when a no dairy meal is available is usually a salad .......... plain green salad. Sometimes they can add tomatoes, or green and red peppers.


It's edible .................. but not my favourite! Especially the time the chef slathered it with olive oil, instead of giving me a little jug of vinaigrette!


That train has an interesting way of preparing meals.

An outside supplier provides pre-prepared meals, about 4 times better than airline meals .................. they come on board in their separate elements.


The chef reheats the meals in the kitchen, then plates them up, combining the necessary elements. Usually a salad is made by the chef.

so .......................

last Christmas, the supplier did not supply my meal, but the chef checked the ingredients in the 3 options.

There was a roasted cod with lobster sauce, scalloped potatoes and veggies, with all elements separate until ready to serve.

The cod and veggies were OK ..................... so that is what I had to eat. He also added a couple of wedges of lemon to the plate




I've been lucky so far ........... since I had several mishaps with unexpected dairy in meals or bought food in the first 2 years, I have not had a major stomach upset ..............



all fingers and toes crossed that I haven't just put the kibosh on myself :-D

Thank you everyone

The FODMAP diet works for me!!! BUT I,ve been doing it now for 20 years but when I told the dietitian this she said you cant have it wasnt invented!!!! until 15 years ago

But on top of the FODMAP I cant eat
eggs oranges coffee garlic oil and oils at all any pickles or chutneysany nutsgravey powders alcohol marmite chillis peppers honeypotatos some veg like butternut squash. vinigars lemons limes mayo golden syrup tomatoes onions currys
of course the normal wheat and any gluten cereals milk and all products

Now most of these dont matter BUT when you shop you suddenly realise how much our foods contain so I cant eat them either

The dietitian said IF I cant eat whats on the FODMAP list this diet will not work for me

In 10days I have gone down 2 dress sizes and lost 9 inches of my waist!!! and my tummy rumbles never has this happened before

But as I cant eat eggs the fodmap diet will not work

Now many of you have said each and everyone needs or will be able to eat some foods others cant so I,m back on my own again

Eat it and see

Thanks for your moral support its good to know I,m not the only one

:-D :-D :-D :-D

We were in Venice on a group tour a couple of years ago. An included meal for OH consisted of plain rice and no coffee at the end.

Venice is not easy for GF but the rest of Italy can be very good.

certainly my dairy intolerance is much easier to handle outside home than it was when I was first diagnosed 10 years ago ......................


but I have been given garlic bread slathered with garlic butter ........... after assurances that the whole meal would be dairy-free.


I do wish though that servers (and cooks) would stop asking me if I can eat eggs :-S

Btw - 32 years -- did OH still have that dreadful bread in a tin. So pleased my 2 missed out on that.

My Oh didn't have 'that' problem but now collapses if eats oats. Can't eat most supermarket Gf biscuits - always need as a snack at work.

Last year my 2 went on a visit and were taken out to lunch in a good Gf pizza chain. :-P One was throwing up on her own in the street of a strange town - the other joined in later. Couldn't go and rescue them as my car had air in the new brake fluid - lucky they were able to stay the night and come home on the train.

apart from that it is much easier then when we started about 15 years ago except that the latest mag from Coeliac UK now seem to be suggesting they'll do away with the paper handbook.

:-0 :-0 :-0 :-0 :-P :-P :-P

Work sent me to a dietician. There way of observing the 'care' they're supposed to have towards their staff. I was suffering from work related stress, but they tried every trick in the book to blame my home life, but as I've lived alone for over 20 years, they could neither blame that, nor a partner. I sarcastically asked if they were going to ask me about my relationship with my cats.

Anyway they sent me to a dietician, as (obviously) living on my own, I must have a rubbish diet, live on pre-packed foods and be unable to work out foods that affected my diverticular disease.
This was a general dietician, not a diverticular expert.
Before I went, I kept a note of exactly what I ate for 3 weeks and took that along, on a spreadsheet.
The dietician could find absolutely nothing wrong.
Took the spreadsheet and dieticians note to my line manager, who actually questioned the truth of my diet, and the amount of venison I ate!!!
So, I was now being accused of being a lier, as the outcome didn't conform to their wishes!!
Guess who sort of got the idea her best bet, for the sake of her health was to leave the poxy job?

Oh - Coeliac Nameless.

OH suffered for 12 years before finally being diagnosed. Everyone thought that she was dying with cancer. The specialist tore a sttrip off the GPs that she was going to - they even prescribed medicine high in gluten.
The record was 32 times to the toilet one night until she was sorted. That was 35 years ago and now it is quite common - except that there is now a 'fad' for being GF - and we have found that some restaurants still do not have much of a clue. E.g a GF meal served with breadsticks!
Ask me about it!! Tell me about it!

B

I was told to see a dietician after I was diagnosed with dairy intolerance ...................

............ I didn't go, I just kept very careful watch on what I ate, and very carefully checked ingredients on bought foods


I was told to see a dietician after my blood sugar was elevated and I was diagnosed as pre-diabetic. I didn't .........

...... instead I read up about it on-line, and adjusted the allowable foods to suit me ....................... all the allowable snacks and most of the meals included cheese, milk, and / or yoghurt. A major no-no for me.

I managed to lose 28 lbs in 6 months, and am now a further 5-6 lbs down 2 years after that ............ in other words, I haven't put any of the weight back on.


My blood sugar was back down to normal levels after the first 6 months, and ahs remained low.


I find it interesting that when I have mentioned weight loss on subsequent visits, I get a very sharp look form the doctor and "Did you want (or intend) to lose weight?"

In other words ................. they now seem to be more concerned that I might be losing weight for an "unknown" cause.



I went the route of no dietician(s) because OH had been sent to talk to one earlier ................ she went through his diet, including how much he drank.

In the end, all she could say was "well, you eat very healthily. You could stop drinking"


He has 1 small drink (1 or 2 oz) before going to bed every night! :-S

Kemp and Maggie,
I have Diverticular disease and had 2 colonoscopies in the last 2 yrs....not very pleasant prep....first one took 11 polyps away,2nd to see if it was all clear and thank goodness it was...

I was told about the Fodmap diet by my doctor.,but ignored it and have a balanced diet of things I know suit me...I believe everyone is different so hard to generalize .

I have mainly chicken and fish...occasional bit of red meat if very tender.
Have a banana every day,and use olive oil and sesame oil in stirfries,but do like my butter.
I love onions but tend to avoid them,except some spring onion along with other vegetables and I'm fine with beet root and capsicum peppers and a bit of garlic.

I follow what my mother used to say...everything in moderation...and a saying my dad had...always leave the table when you feel you could eat a little bit more.....
I believe stress plays a big part in this disease.

I manage to cope.....only YOU know your own body!

Hope this helps Kemp! :-)

My DH is a big fella, he's just on 6' and weighs about 105kg (whatever that is in lbs). He's not fat, but big, he's been about that size since he was 18.

A doctor told him he was obese. I was SO angry! Next time I was at the surgery I spoke with my doc (who was the head doc at that surgery) and he was shocked.

The nasty doc had made appointments for DH to have tests done..... which were all fine, and she also made an appointment for ME to see a dietician, because I must be feeding him all the wrong things. No idea what the doc said to the dietician, but she had an uppity attitude when I arrived for the appointment....... at the end of which she said she had no idea why I was there, as our diet was very healthy, and I gave her some recipes!

Dear all

Hello

At a hospital appointment, I was once told by a very silly nurse that I was overweight!

In fact, I weighed only 7 stone. :-S


Take gentle care
Best wishes
Elizabeth, EOS
xx

:-S

My doctor told me to cut down on the alcohol When I asked if he drank, he said "Of course I do, how do you think I get through this job?" Bob

In this household we are great fans of dieticians (NOT). The worst was when I realised the dietician was assuming my then teenage daughter was anorexic. She ignored my pleas of ' she can't eat that'. She hadn't bothered to check the notes properly. The 'squiggle' on her notes read 'coeliac'. ( I bet she had me down as a pushy interfering mother)

When Oh was diagnosed before daughter we found knew more about Coeliac than the hospital dietician hadn't a clue about how to answer our more searching questions.

I'm sure there are good ones out there but we've only come across one.

OMG!!! I looked at the diet - what a load of wotsit.
I see it's for IBS, not for being overweight.
Different foods affect different people's bowels in different ways - you can't have the same diet for all - and, quite frankly, this looks like a f*rt a minute diet :-S

It also misses one vital drink off the 'good' list - TEA. By that I mean good old stand your spoon up in it - builders tea!

I have IBS & Diverticular disease - both greatly improved by not working at the moment, and slowly getting rid of the work related stress I was suffering from. (though I'll have to look for a job soon :-()
I love beetroot - but my gut doesn't. Strangely, I found I cant eat purple carrots - they have the same effect.
I also found cauliflower cheese (which I love) was having a detrimental effect - until I ditched the cornflour for wheat flour!!
I don't drink 'real' coffee for the same reason - decaffeinated or not, it has the same effect.
Some the above are on the 'good' list, some on the 'bad'.

That would be because we're all individual!

Oh - and don't forget, we were told not to eat butter, real' milk or eggs once. A few years down the line - all the 'knowledge' imparted to us has been proven to be bunkum!!

:-D :-D :-)

Cheer up just eat what you like.
so long as your reasonably healthy dont blinking worry :-D

LOL yes I did think about that !!

I dont give a $%£^ that I,m over weight its the fact that I cant eat so many foods I dont really eat anything!!

Chuck the bloody books in the bin.
if your a bit overweight so what, better than being a bag of blinking bones. :-D

I have been to see a dietitian!!! as my doctor thinks I need the FODMAP diet which if you look at it .....( well I did ) it seems I,ve been doing this on and off all my life My worry is

Am I getting all the vitimins ect I need!!??

She spent 45 mins telling me about this diet using two booklets which she then gave to me to read and keep!!!

end of!!!!

No way have I been doing this diet all my life coz it was only invented 16 years ago!!! OH DEAR OH DEAR

Well lets put it another way IF I eat ANY and more of these foods on the RED list I get sick....so avoid nt eat them does this mean I invented this diet ??

I,m so down about the visit I dont know where to go from here

Any ideas Please??