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Have had our step grandson for a couple of days

ProfilePosted byOptionsPost Date

Purple **^*Sparkly*^** Diamond

Purple **^*Sparkly*^** Diamond Report 10 Apr 2015 03:11

It is lovely that you can offer care to help out and as your daughter has said to let her know when it becomes too difficult, you won't feel too pressured I hope. It must be very difficult for your daughter and s.i.l. so I hope the meds continue to help the lad cope with life ahead as he gets older.

Do take care of yourself, Shirley, you have a lot on your plate

Lizx

Gwyn in Kent

Gwyn in Kent Report 9 Apr 2015 22:22

He obviously feels loved and secure with you, so is happy to adjust to a change of scene.
It's great that the medication seems to be helping him. I hope the improvement continues so that you can continue to spend more special times together.

I'm sure it must be really tiring when he stays, as you can't really relax, but how wonderful to hear those words and know that you have a precious bond.

I hope next week's visit goes well for you all.

Gwyn

Shirley~I,m getting the hang of it

Shirley~I,m getting the hang of it Report 9 Apr 2015 06:46

He is Maggie

Last time he was here he broke the printer as he was too impatient waiting for the paper to come through from printing so he pulled it . this broke one of the printing heads so i have had to buy a new printer

He didnt do as much printing this time as there's still ink in it but he will be here next week too so have got new cartridges at the ready .

Liz he is a lot to take on , 3 days next week too but as daughter works full time holidays are a problem.

Before he was on the med she got him into a holiday program ,but he only lasted two weeks before they said sorry he cant come anymore as he is too disruptive to the other children and sometimes was lashing out at them.

We take every holiday now as it comes, daughter has said you must say when you cant do it anymore

maggiewinchester

maggiewinchester Report 8 Apr 2015 23:41

I'm so glad the medication is working. Is he still 'eating' you out of paper and printing ink? :-D

Purple **^*Sparkly*^** Diamond

Purple **^*Sparkly*^** Diamond Report 8 Apr 2015 22:36

Bless him, how sad that he can't progress as a teenager would but has these limitations to cope with. Despite the autistic spectrum problem, he obviously forms bonds and you have done wonders to make him feel close to you, Shirley.

It's good that the medication is helping. I hope it means he can spend time with you again altho it's a lot for you to take on with things as they are for you and your hubby.

A change of scene is sometimes difficult for autistic people but he obviously enjoys spending time with you and doing something different. Good for him.

Lizx

Jane

Jane Report 8 Apr 2015 18:10

That is good Shirley that the medication is helping .I am sure it will make life better for him and the family.How lovely to hear those words from him :-) He obviously loves his Nanny <3

Shirley~I,m getting the hang of it

Shirley~I,m getting the hang of it Report 8 Apr 2015 17:47

Daughter bought him to ours Monday evening to stay over to today .His dad came for him this afternoon . we had been shopping and got back home and his dad was waiting for him

He is 15 going on 10 and has genetic problems that give him slow development and on the autistic spectrum

He is very behind in some ways , has had awful problems with toileting as his bowel muscles are underdeveloped so he binds up or has big problems with wet farts etc.

He does now speak but can be difficult to understand BUT can remember things that happened that you have to say yes I remember that when he asks or tells you

He has been told .for his own personal safety , that the willy area is personal and no one should touch that area !! Bit difficult lately when seeing the pediatrician who wanted to examine that area !!

So because he was getting so uncontrollable with lashing out problems and not being able to get him to calm down daughter and SIL accepted he does need to be on medication . he started off on 0.5ml but this has been upped to 1ml a day

Daughter was worried about side effects and dulling him down too much so he lost who he is , BUT its been a remarkable change for the lad and he seems now more on even keel

He will never live independently and will always be vulnerable BUT as he gets older he needs more protection so he isnt exploited or falls foul of the law cos of his actions that may put him at risk .

We love him to bits , he is a 24/7 handfull but him just saying when he comes I,ve missed you nanny , and when he goes LOVE YOU , thank you for having me , makes your heart melt <3 <3 <3 <3 <3