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MS Awareness Week

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ProfilePosted byOptionsPost Date

supercrutch

supercrutch Report 27 Apr 2015 22:54

You may know someone who suffers, you may come to know someone who suffers, it may be you or a loved one that will face this in the future. Please take time to read about this truly debilitating illness, Thank you.

Sue

http://www.mstrust.org.uk/

Researching:
Jones!!!!!!!!!!!!!!

maggiewinchester

maggiewinchester Report 27 Apr 2015 23:09

Hi Sue, One of my nephews has MS. He was diagnosed at the age of 22, about 20 years ago. He's one of the 'fortunate' ones, who trialled Beta Interferon, and, because of this, is still prescribed it, with the occasional inhalation of another substance to counteract the occasional side effects. :-S
He's managed to stay employed, married 2 years ago, and their baby is due in May. :-D
The Beta Interferon debacle, with the drug companies overpricing drugs is disgusting. Nephew wouldn't still be in a job without it.
The nephew in question is the person on the right that you can partially see in my profile pic :-D

Researching:
Henry Floyd (g x 4 grandad) Allegedly the heaviest man in England in 1842

supercrutch

supercrutch Report 27 Apr 2015 23:16

Hi Maggie,

It's great to hear he is doing well. Lucky to have found a neurologist who was pro-active too. I agree about the cost of treatments, drug companies have a lot to answer for :-(

My eldest daughter was diagnosed at 18, she's now almost 37 now. She has relapsing/remitting and has coped very well too. She's living in Guatemala with our son, less stress and her symptoms have eased thank goodness.

It's still a misunderstood illness unless you have personal experience of it as the symptoms are so diverse (and strange).

x

Researching:
Jones!!!!!!!!!!!!!!