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This has been building up over years but now I have had enough.
As a lot of you know my eldest daughter is 29 and was diagnosed with multiple sclerosis at 18.
She got through uni with the help of the Welsh Assembly Government (who were brilliant in supplying a computer with specialist programmes, screen filters and magnifyers, also someone to transcribe during lectures).
Since then she has worked full time, even whilst going through muscle spasms and temporary loss of sight as is the way with MS.
We sent her off to Guatemala to stay with our son for 9 months as she was well enough to go. He understands the MS and looked after her when necessary.
Since returning she has deteriorated and cannot take a job where she is on her feet for long periods (bang goes the option for a non stressful job in a shop or similar). Also her speech is more affected (no chance of telephone work either).
She wants to work!!!! BUT she needs a standard non professional position which doesn't offer too much stress.
She has never received any benefit to date. We are now in the position of bringing her home to a small village, away from all her friends in a large town.
If only the DSS recognised that to award DLA it would help with her getting around to look for work. But as she has 'good day's she was refused.
She applied for housing benefit 3 months ago and they are arguing about an account with £28.26 in it and insisting she has money elsewhere. SHE DOESN'T. She still has not received one penny.
What is wrong with the system? When the great unwashed get every benefit going, because they lie and know how to play the system. Daughter doesn't lie and won't manipulate the form filling because she is honest.
So to sum up: she is looking at losing her precious independence because she cannot afford to stay where she is whilst looking for a job.
I have now decided it's time to step in. I have fought enough for other people over the years and have tried to leave her to fight her own battles as that is what she wanted.
I am just so damn angry about this. I will take this to Westminster if I have to, I will make a bl**dy nuisance of myself.
I know she is not the only person to suffer at the hands of the system, perhaps if I achieve anything it will benefit others in the same position.
All suggestions welcome.
Thanks for reading this, if you have managed to get through to the end.
Sue
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