General Chat

What a sad morning. Gail your post started me off crying! We are like a family aren't we. We are so lucky to have the support of one another.

Caz don't deleat, your post is what we need to get us pulled together again.

Gill pm me anytime you know that!

Incase anything happens to me or any of you, I'll say now, I do love you all :o) xx

Caz, I think with most meds it is trial and error. Each of us has different body chemistry, thus the rash with the patches. Have you thought about a morphine pump. A friend has one, it is fitted internally. He also takes other painkillers as a boost.

I think all of us have lived in that black cloud at times. We know you are a fighter, you also need to know that it is okay for you to feel this way at times, you cannot be the strong one all of the time. Even though you would like to be.

Please do no delete, we miss you and worry even more when you are not around.

I give you permission to go easy on yourself. Let us know if the nurse has any ideas re meds.

Love and hugs

Gail

Morning girls, I think what has happened to Deanna has hit us all hard, it certainly knocked me for six. When something happens to one of our family we all feel it don't we, I feel selfish now for hiding away in my own black cloud, I was (am) so miserable and down I didn't want to post because I didn't know what to say. When this thread started I had no trouble at all in writing and helping people, now I struggle with the simplest sentence. I have been told FM does that but I am not so sure. I know the pain is driving me to distraction, these new patches don't work on me, the first lot were perfect when we got the dose right, but the rash they caused was awful.

I am also worried since I read about poor Wendy Richards with her cancer, it started with breast cancer and has come back twice. Now it is in her bones, same as mine has done, maybe it is because I am down but I have it in my head that I will end up like her.

I am going to have a word with my Macmillan nurse this morning, see if she can suggest something to help me get through the day. Surely there must be a painkiller somewhere that will work for me.
I should delete this but that is what I have done with nearly everything lately. I am angry with myself for being like this with poor Deanna laid in hospital and another dear friend not knowing from one day to the next what the day will bring.
Sorry, I am not feeling sorry for myself, it's just that I don't know where I am at or how to get out of it.

Caz xx

Gill, you can always PM any of us and me in particular when you want. Love my cyber family.

Gail

I agree Gail - I feel like I could kick a bucket all the way around a paddock.

I wish I could 'chat' on here freely but I can't anymore.

(((((((((((((hugs for all))))))))))))))

Gill

Mary, it has been difficult to cope with and as only another cyber friend can understand the closeness we all feel for each other, we go through the hard times and the good times together. The joys and the sadness.

It is difficult to express how we feel and I know my coping skills have hit rock bottom over the past week. Have constantly had to try an pull myself together and not cry, when a good cry would probably do me more good than bad. Trouble is we try to stay strong for those around us and try not to let our true feelings show to them. We do manage to do so on this thread or via PM.

It is trying to express our sadness of a dear friends illness, and the extra worry that we cannot be there to hold her hand. I would love for her family to know that Deanna has friends all over the world and are feeling the anxiety of waiting and hoping for news, any news.

I too have felt my immortality this week, people around my age passing away, and Deanna having a stroke.

Come on people, we need to pull together, and not stay in our own little worlds like we did before this thread started. Voice how you feel.

I feel like going and kicking a bucket around the paddock, except I would probably fall over and not be able to get back up. So I am sitting her and typing instead.

Gail

I, too, have been knocked sideways by the news of Deanna's stroke. Had one of the worst days I've had in months yesterday, irritable, and upset to the point of tears. My grandson had multiple meltdowns, broke glass door of the china cabinet, unplanted my huge Oleander tree in the bathroom (mud wall-to-wall), threw a bowl of cereal and milk, urinated on the carpet, pulled down & broke the curtain rod, hit me several times etc etc, but now I ask myself, perhaps my own response, the anxiety triggered by Deanna's news, feeling vulnerable at my own age, left my coping skills lacking, and less able to be calm with him when on a rampage.. Poor example for the kids. Agitation breeds agitation, and not just with autistic children.
This hits so close to home, it's remarkable how close I feel to some cyber friends whom I've never met personally, but have shared some close moments. Deanna is a gem among women, and I'm honoured to consider her a friend.
Mary XXXX

Deanna's stroke has knocked me for six. By the quietness on this thread I do not think I am alone in this.

Thank you Carole for the update, looks like there is some improvement, I do not pray much but have been doing so after hearing about Deanna and want her back with her family, Tony and Allen, as well as our extended family.

Please everyone continue posting, I know we are overwhelmed with sadness with Deanna, but I also feel that we need each other more now because of Deanna than we did before.

We have been getting some rain and our tanks are full. There is blossom and flowers every where in our yard. It is a beautiful spring and the best we have had for 10 years. It does not matter how much you water the garden, it is the rain and no frosts that make such a difference. Vegetable patch is springing to life, so lots of great fresh vegs for Christmas.

Thinking of every one and lots of love and hugs and Deanna we want you back.

Gail

Gail

Carole, yes it has been a shock. I didn't see it at first because we had visitors and I was not on line so the first I knew was the message put up on the board (I think Tony's first message via Carole). Deanna is popular because she is always amongst the first to give support to others, a lovely lady and I do so hope she will soon be well enough to come back on here, she is much missed. and what a caring son she has who is concerned to let all her friends know.

Ann
Glos

Latest news from Tony..

Thanks to everyone for your messages. My mum is able to read now (though she can get confused about what she is reading), but I have printed the messages and taken them to her, it will probably take her some time to read and understand them all. With regards to cards and flowers etc they are not allowed on the ward she is on due I think to special measures regarding infection risk. If Anyone who has her address wants to send a card I'm sure she will appreciate it when she either comes home or is moved. She is also on fairly restricted visiting for the time being.


Tony

This seems to have knocked us all sideways. What a well thought of lady Deanna is. I am going to write to Alan and Tony when I have a moment to think about what to say.

Love to you all Carole xx

Hello everyone

I hope you are all feeling a little better today

I hope Deanna is recovering from her stroke

take care

Gill

Goodmorning all
just to let you no have just phoned Allan Deannas hubby to ask how she was,he said its early days as yet,told him everyone was wishing her to get better,the hospital is Kettering northampshire did,nt get post code or ward,as was getting abit upset he ask me how i was ,what realy loverly man
Dutchxx

Hopefully the card will arrive on Monday and they can take it in to her.
Does no one have a phone number so they could ring and ask how things are?
Lizx

To Carole and all my friends xxx.
I have just read about our Deanna being taken unwell..like all of you I am so worried and just pray she is responding to treatment, bless her..such a bonnie lass xx.
Am thinking of Alan and Tony also who must be devasted, such a close knit family who are as one..
lots of prayers will be said as I lay in bed..
My love to you all and sleep tight

JoyceP xxxxxxxxxxxxxxxx

any one had any news about our Deanna? Any one know what hospital she is in? I have sent an email hoping her Tony, hope he see's it, but no reply as yet.

Love to all friends on here, xx

I responded on Liz's thread and carole's last night but just wanted to sen lots of love and positive thoughts to Deanna and wish her well again. Can't stay on here for long as I have visitors. Be back later today.

Ann
Glos

my love to deanna get well soon hun

love and hugs

carolina xx

Should any of you visit Deanna or communicate with her family please pass on my sincere regards

Thank you Liz.

Gail

just added your name to the card Gail,

really must get to bed now.

take care, love

hope you are ok

Lizxx