General Chat

Well the infection has gone but sadly he is now bedridden . He had several fits with the sepsis shock and it has affected the Lewy Body Dementia which has accelerated .
He has a cetheter for his pee but is incontinent for his bowel


He will need a full care package with two carers to come in very 4 hours to turn him and to see to his personal care . I was hoping he could be persuaded to have the hoist to get him out of bed but he fells unsafe with it as he feels he is falling so it may not be an option

No matter he wants and needs to be home as he is worrying and giving up in hospital

It won't be easy I know but I want him home too for whatever time he has left. <3

I have had meetings with several, different divisions who are involved . It seems though they don't liaise with each other cos I often have to say no that's not him . I wonder too if they know the right guy as they think he has a pacemaker fitted Nope he doesn't !,, worrying !!

But it's all in motion to get him home which is the most important thing
:-D :-D :-D

I am pleased he is coming home Shirley
and hope his health improves soon

I am so sorry you are having a hard time of late
Bless you and your Hubby :-) :-)

sorry to hear that his Lewy Body Dementia has worsened

I hope the care package works ................ what happens if he soils himself during when the carers are not there? Do you have to clean him up?

Do they come every 4 hours day AND night?


It sounds as though it is going to be very hard on you.


good luck Shirley xxxx

Shirley <3 <3

Shirley...sending you hugs <3 <3 <3

Thank you Jo

I just want him home
He is my best friend ,we have been married for 58years so he is my world and well as part of me .
Our daughter has said mum his face lights up when he sees you so he needs you as much as you need him ,BUT It will be hard work for you and it may be that if we get another year with him with us it may be all we can hope for so we may have to accept that

Well I will accept any time I have with the guy I met at 18 and married at 20 and who is my best friend as well as my darling hubby <3

Well if he soils himself overnight,then it seems he will have to wait to,the morning to be cleaned up ,
They have suggested we get a baby monitor so I can hear him if he needs help as I can't sleep downstairs too

<3 <3

I am pleased that he is coming home as it is what you both want. To help him you have to be strong so take every bit of help that is offered and don't forget to look after yourself.

Thinking of you <3

Shirley just take one day at a time <3 <3 such a worrying time for you and the family...

We are all here for you , even if it is just to listen .....

<3

Shirley
Thinking of you and your husband. <3

Yes I have told the carers and social services I will accept all the help they can offer.

If I find we don't need some parts of it then I can cancel that but initially I will accept
everything offered

I can understand how you feel Shirley.......accept all the help that is offered and be good to yourself.

<3 <3

Hello Shirley,

Wow, 58 years of love and friendship is quite something. <3. How wonderful.

I am pleased for you that hubby is coming home. No doubt there will be an adjustment period for you all. I hope that goes as smoothly as possible and you will get to share many more special moments with your beloved hubby. <3.

Sending you a huge (((hug)))

Shirley .you will have your OH with you in.the place he calls home & see faces he knows the best .it will be hard for you but get all the help you can .Take care off yourself Barbra <3

Shirley I am pleased for you both that your husband is able to come home with care and support in place for you both. Perhaps he might improve in his familiar home surroundings. On the positive side is the fact that maybe you can relax a little after all the travelling and hospital visits which can be very draining as I know only too well.

You are wise to accept all that is offered as it will be a challenging time ahead for all. Remember to take baby steps, just one day at a time and keep focused now that you are both together. Take care of yourself, it's easier said than done but necessary too.

Dear Shirley

Hello

Sending many caring thoughts to you and your husband.

Wherever you can, keep a small notebook of the people you have contact with, names, job titles, and contact numbers.

That way, it will be easier to decide what is working for you and your husband.


Take very gentle and good care of yourself
Loving wishes
Elizabeth, EOS
xx

I hope that you and your husband get all the help you need.

Sheila <3

I am pleased to see that your much loved husband is coming home. He will be happier in familiar surroundings with you.

<3 <3 Shirley <3 <3